Want to contribute to OpenTrials? We are looking for:
Data partners: people with data about trials
All data donors get full credit and recognition for their data, and citations from researchers downloading and re-using it through OpenTrials, as well as the knowledge that their existing data – perhaps from old projects – is being used and doing good. Some examples of data that the community can re-use:
- Have you done a study on publication bias? If so you will have data matching a registry entry, or ethics committee paperwork, onto published papers, and perhaps onto other documents too. These linkages are valuable to improve the quality and availability of data on trials for everyone.
- Have you done a systematic review? if so, you will have structured data about clinical trials included in your review, that we can import and put to good use.
- Have you mapped one dictionary of medical terms, or drug names, onto another? If so this can help us clean up our data and make it more useful to users.
Funding partners: people who can contribute money, or other resources
As a funding partner you will have a stake in an important and groundbreaking data project, producing much needed infrastructure for medicine. There are also opportunities to prioritize a particular drug or disease area to work on.
- Would you like to see the trial data and documents for a particular drug or disease area made available, and discoverable, on the Open Trials platform as a priority?
- Do you have access to funding that will accelerate progress at OpenTrials?
- Are you able to contribute significant in-kind resources to widen the scope and ambition of the Open Trials project?
Community partners: people with networks, and knowledge
We always want to meet with more patient groups, trial sponsors, and any other organisations who will use, generate, or contribute data. You will receive updates, invitations to events, and the opportunity to help shape the project.
- Are you interested in open data and/or health, and want to be involved in the Open Trials community?
- Can you contribute your knowledge, needs, and network to Open Trials?
- Are you interested in accessing the community around Open Trials, and also in contributing your knowledge about patient groups, trials sponsors and other organisations who generate or contribute data?
Individual partners: people who want to contribute time to the project
As an individual partner, you can play a key role in helping to find data, clean data, understand it, develop the project, and help get others involved.
- Are you someone who is interested in contributing your time as a volunteer to the Open Trials project?
- Can you identify new sources of data to add to our list of data sources?
- Are you wanting to see Open Trials reach its ambitions and provide more data to the public? You can help us find data, clean data, identify new datasets, develop the project and help others get involved.
- Perhaps you are someone working in health/a patient/a citizen/a data journalist/a student who wants to work on this pioneering project?
Users: patients, researchers, healthcare professionals, funders
As a pre-launch user you can get early access to the data, and the opportunity to help shape the project. You can contribute with user testing of the Open Trials platform. You can also give us new user stories, feature requests, and validation of the project.
- Are you someone who wants to belong to the official ‘user’ group for Open Trials, so that you can get early access to data?
- Are you willing to be involved in user testing, whether you are a patient, researcher, healthcare professional or funder?
- Can you provide us with new user stories, feature requests or validate the project as it progresses?